Home- Global FKRP Registry

The Global FKRP Registry is an international registry that collects genetic and clinical data about persons affected by conditions caused by mutations in the. Fukutin Related Protein gene, namely Limb Girdle Muscular Dystrophy type 2I LGMD2I. And the rarer conditions Congenital Muscular Dystrophy MDC1C. Muscle Eye Brain Disease MEB. And Walker-Warburg Syndrome WWS. Patients from anywhere in the world can register. Since patients with FKRP mutations are rare, every single person counts!

OVERVIEW

The website fkrp-registry.org presently has a traffic classification of zero (the smaller the higher page views). We have downloaded eleven pages inside the website fkrp-registry.org and found thirty websites referencing fkrp-registry.org. I observed two contacts and directions for fkrp-registry.org to help you connect with them. I observed one mass network platforms linked to fkrp-registry.org. The website fkrp-registry.org has been online for eight hundred and seventeen weeks, two days, twenty-two hours, and thirty-seven minutes.
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Oct 2008

FKRP-REGISTRY.ORG TRAFFIC

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FKRP-REGISTRY.ORG HISTORY

The website fkrp-registry.org was first recorded on October 30, 2008. It is currently eight hundred and seventeen weeks, two days, twenty-two hours, and thirty-seven minutes young.
REGISTERED
October
2008

COMPANY LENGTH OF LIFE

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LINKS TO FKRP-REGISTRY.ORG

PatientCrossroads CMD

Notice of available clinical trials that apply to your registered profile. Notice of available therapies that apply to your registered profile when they become available. We will not be successful in finding a treatment or cure unless we know. Who the affected individuals are,.

Home Jain Foundation

Free Genetic Diagnosis for LGMDs. Free diagnosis tool for physicians. The Jain Foundation has cultivated a robust dysferlin research field that spans the globe.

Limb Girdle Muscular Dystrophy type 2i - Limb-Girdle

Limb Girdle Muscular Dystrophy type 2i. Thank you for visiting my website! What is Limb Girdle Muscular Dystrophy? LGMD primarily affects the muscles around the hips and shoulders. You also may hear the term. What tests are used to diagnose LGMD? .

Muscular Dystrophy Australia Muscular Dystrophy Assoc

Working towards a world without Muscular Dystrophy! The Home of MDA. Working towards a world without Muscular Dystrophy! The Home of MDA. From an Orange Crate - The History of MDA. A Typical Year at MDA. History of the MD Logo. Cough Assist Protocols Short Term Loan.

Forschungsverbünde - Research for Rare

Research for Rare - Forschung für seltene Erkrankungen. Mutations in the unfolded protein response regulator ATF6 cause the cone dysfunction disorder achromatopsia. Filmbeitrag des Verbundes Primäre Immundefizienzen.

LGMD AWARENESS OF INDIA - Home

Bull; What are the different types of LGMD? Bull; What are the symptoms of LGMD? Bull; What causes LGMD and how is it inherited? Bull; How is LGMD diagnosed? Bull; Why is genetic counseling important? Bull; What research is being done? .

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CONTACTS

Klinikum der Universitaet Muenchen, MD-NET

Maggie Walter

Ziemssenstr. 1a

Muenchen, 80336

DE

Domainfactory GmbH

Hostmaster Domainfactory

Oskar-Messter-Str. 33

Ismaning, 85737

DE

FKRP-REGISTRY.ORG SERVER

I diagnosed that the main root page on fkrp-registry.org took one thousand one hundred and seventy-three milliseconds to download. We discovered a SSL certificate, so in conclusion I consider fkrp-registry.org secure.
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Home- Global FKRP Registry

DESCRIPTION

The Global FKRP Registry is an international registry that collects genetic and clinical data about persons affected by conditions caused by mutations in the. Fukutin Related Protein gene, namely Limb Girdle Muscular Dystrophy type 2I LGMD2I. And the rarer conditions Congenital Muscular Dystrophy MDC1C. Muscle Eye Brain Disease MEB. And Walker-Warburg Syndrome WWS. Patients from anywhere in the world can register. Since patients with FKRP mutations are rare, every single person counts!

PARSED CONTENT

The website states the following, "The Global FKRP Registry is an international registry that collects genetic and clinical data about persons affected by conditions caused by mutations in the." I viewed that the web page stated " Fukutin Related Protein gene, namely Limb Girdle Muscular Dystrophy type 2I LGMD2I." They also said " And the rarer conditions Congenital Muscular Dystrophy MDC1C. Muscle Eye Brain Disease MEB. And Walker-Warburg Syndrome WWS. Patients from anywhere in the world can register. Since patients with FKRP mutations are rare, every single person counts!."

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